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our neurosurgeon told us he wouldnt band either and my sons assymetry was similiar (15, 15, and 17 mm). sorry I cants ay about results with other bands but CT has results older than your son on their site, I would band
Sorry for the repeat post for those of you on both plagio message
boards...
We just saw a craniofacial surgeon today for my son Jake, 16.5
months. After asking questions and examining him, the surgeon said
he would not band him, that there has been improvement (from his 4m
CT scan) and it will continue to improve over time. But then he
asked me what I wanted to do, and I said that I would band him
because at least I could say I tried (totally in tears too, of
course. So embarassing). So he went ahead and wrote the prescription
and said he would defer to the orthotic department on whether they
think it will be worth it or not. He was really nice, and I felt
like he took his time and really talked to us about it (A vast
improvement from my experience with a neurosurgeon a year ago).
So we went to the "brace shop" in the same hospital and spoke to two
orhtotists. They measured his assymetry to be 11/16 of an inch,
which they described as moderate (not sure what that comes out to in
millimeters). They both said they were willing to treat him but with
the realistic approach that we may not see a huge improvement due to
his age, if any at all. They use the StarBand. We have another
consultation at Cranial Tech in Charlotte on Thursday. My husband
doesn't think we should band, but he said it was up to me, because
he knows this has been bothering me so much, way more than him. And
of course, the surgeon today just validated his opinion (now my
husband can say TWO highly qualified pediatric surgeons have said he
doesn't need banded).
So now the weight of this decision is solely on me. What should I
do? Should we even go ahead with the banding? I worry whether it
will be worth it at this late stage, and I worry that either the
band/process itself and/or the debt we incur over it, could put a
wedge between my husband and I. He's not adamently opposed to it,
but it's obvious he doesn't think we should do it. My mom thinks I
should 100% go through with it. Should I make a decision based on
cost (one's in-network and one isn't) and proximity (35 minutes or 3
hours each way), if I'm not going to see huge results anyway? Or
shoudl I just forget the whole thing? Does anyone else have an
opinion? I'm open to them all! Thanks!
Nicole
(mom to Jordan-4 today!, and Jake 16.5m)
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