[Plagio] more head tilt with helmet?

Hey all!

Keenan has been in his helmet for almost a week now, and I was wondering if anyone else noticed that their kiddos with tort began to tilt more with the helmet. It is mostly when he is on his back, even after positioning his head midline, it seems to drift to the side more than it did before the helmet... It also seems like the only time he really minds the helmet is when he is on his back.

Any ideas on what to do?

Kami

ladpurdu <ladpurdu@yahoo.com> wrote:

If you believe something is wrong you need to fight for it. When I
took my son to the doctor at 2 months for tort. the nurse acted like
I was crazy for even mentioning it and when I spoke with the doctor
(of course the only one at my peds. that I don't like) she finally
gave in to give me the referral to First Steps (IN government program
for babies) because I think she knew I wouldn't take no for an
answer. When I finally was able to see my regular doctor at 6 months
she kinda acted like there wasn't a need and that he would be able to
grow out of his tort. but said that if I felt comfortable to continue
with his therapy. He is 8 months now and still in therapy. I know
of a couple kids who only had therapy for 2 months for tort so this
makes me think there was a bit more to my sons tort. then the doctors
knew. I know for that reason alone that I did the right thing for my
son.

He was just fitted with the band yesterday and has not had any
problem so far. He seems to tilt his head more when it is on but
I'll speak with his PT today about it and hopefully it won't be a
problem when he gets used to it. Again my doctor acted like I was
crazy when I told her that we had taken him to an orthotist to have
his head measured per our PT's request. After she read his report
she agreed that he did need it.

I believe that a mother has a certain instinct about their kids. I
knew something was not right with my son and I ended up being right.
Fight for your daughter, get a second opinion if you need to. Don't
regret something that can't be fixed later.

Lisa

--- In Plagiocephaly@yahoogroups.com, llcoler@... wrote:
>
> My baby is 14 mo and was in the helmet for 8 mo and went from 14.8
mm diag
> diff to 4.5. She has tort and has been in PT since 5.5 mo. She
looks much better
> but still tilts on and off. She is NOT walking yet and is slow in
gross
> motor, but has PT weekly in the home. My concern is twofold and any
advice or
> comments would be appreciated (I just don't believe the docs
anymore!) We have had
> xrays and have seen 3 ortho ped surgeons and 3 PTs and 2
pediatricians and 1
> cranial facial doc.
> The questions are:
> 1. The face asymmetry comes and goes - or becomes more noticeable
when my
> baby tilts - will this ever end and her face be OK/???
> 2. There is a bulge on the side of her head opposite the
flat/former flatter
> spot - we have been told by the docs and PTs that eventually - with
growth -
> this will not disappear but will be less of a percent of her head
and thus will
> not show/be noticeable.
> Again, PLEASE, any input would be helpful. All the docs, etc have
said she is
> generally not tight and has decent - though not full ROM - and
surgery will
> not help and it is mild.
> Laura
>
>
> **************
> Start the year off right. Easy ways to stay in shape.
> http://body.aol.com/fitness/winter-exercise?
NCID=aolcmp00300000002489
>
>
>
>
>
>
>
>
> **************
> Start the year off right. Easy ways to stay in shape.
>
> http://body.aol.com/fitness/winter-exercise?
NCID=aolcmp00300000002489
>

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