Health And General Life Care: Re: [Plagio] Now I don't know what to do...'

Hi Michelle,

I am sorry for all of the contradicting info you are getting. It makes it really difficult to know if you are doing the right thing.

My dtr is also 7.5 mo and will be casted for her docband on Tues at CT in Mequon. Unlike your son, her CI was 100% (3 standard deviations ), but she does not have any asym. She is also fortunate not to have tort. complicating the situation. We were told she is mild and we too were left on the fence on whether or not to band. I can say that after repositioning for the last 3 mo, her brachy has not improved. I guess this is why we decided to band. Yes, her hair (she has a ton of it) hides the flatness, but we decided it was a now or never decision that had to be made. We also went for a second opinion at Hanger in Children's Hosp.-Milwaukee which confirmed her measurements.

Good luck. It is not an easy decision. Kelli

----- Original Message ----
From: Michelle <Mitchandjim@aol.com>
To: Plagiocephaly@yahoogroups.com
Sent: Saturday, January 19, 2008 11:12:45 PM
Subject: [Plagio] Now I don't know what to do...'

I now have two contradicting opinions and I dont know what to do...

We had our consult earlier in the week at CT and they said he
was "mild to moderate" and she said if we didnt do the band he might
get better and it prob wouldnt be very noticable once he had hair.
She recommended the band, but did seem on the fence about it. He has
the facial asymmetry, so that helped with her recommending the band.

Then, yesterday, we went to Childrens in Milwaulkee WI and saw Maria
the Physicians Assistant in Dr Jensens office. She said he doesnt
need a band. Not really even close. Said his head was off a little,
but not bad at all and repositioning as well as stretches (for the
torticollis he has or doesnt have depending on who you talk to) will
help it even out. I asked her about his eyes/ears asymmetry and she
said its not that bad and that will get better too. She said the
brain is growing and the head is still growing and moving. I told her
what Cranial Tech said, but she still said she doesnt think he needs
it. Then again, she also said they only usually recommend
banding/helmets for moderate to severe, and she said he is mild.

So now I dont know what to do. CT already got the go ahead from
Andrews pediatrician. Thats funny, cause he's the guy that each visit
said it will take care of itself, dont worry, dont band. They faxed
him the paperwork and had the prescription the next day. We havent
even talked to him or seen him in a month..and I never told him we
were going to CT. Wierd. Apparently the insurance will also cover
it. They think at 100%. BUT...my husband, my MIL, my Mom, the
Chiropractor, the Osteopath and the Cranialfacial clinic in Wisconsin
all say he doesnt need the band. The clinician CT "seemed" on the
fence but said its prob still best, and I look at his head and mostly
his eyes and ears and can only pray that it would get better on its
own. His head isnt the worst I guess, but his ears are off and his
left eye is sligtly smaller looking and down/off to left more.
Arrgghhh...

So do I go against what most people think, or do I just trust it will
get better if so many say it will? Plus, he has mild torticollis, and
I have heard the weight of the band can make it worse.

Here are the measurements I just got in the mail from CT:

Cranial Width 123mm ~ mean
Cranial Lenght 137mm ~ -2
Cephalic Index 89.7 ~ +2
Cranial Vault Asymmetry ~ 8mm
Mid Face Asymmetry ~ 2mm
Skull Base Asymmetry ~ 4mm

And then at the bottom (fzR-euL)-(fzL- euR)= 6

Not sure what that all means exactly, but what do you all think about
the banding. Especially since Childrens said dont. Andrew sees an
Osteopath and Chiro (mentioned to you before I think). The Osteo does
Cranial Sacral manipulative Therapy on him. Gets the plates/bones in
his head moving the right way. I am wondering if the band would
conteract or impede the work she would be doing by "holding" his head
a certain shape? She doesnt want him in a band either. Neither does
the Chiropractor. Man, I feel like if I did band him I would be going
against almost everyone else. Maybe hes not that bad and I am just
being paranoid. I have a really good eye for things that are off. I
look at border in our house, or walls or pictures, and can tell if
its off even slightly.

We have an appointment I set up 2 weeks ago for an evaulation with Dr
Vicari at Childrens Glenview/Chicago. I was going to cancel, but
maybe I will keep.

So...what do you all think of his numbers? Should I band? Even with
OSteo treatment?

Sorry for the long long post.. I am just lost as to what I should do
at this point. Andrew is 7 1/2 months old. I know I need to decide
soon.

Thanks,
MIchelle

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