Go visit Cranial Technologies website and read up on this groups information. We have all pretty much been in your shoes. Ped says it will round out, child has tort, is developing a flat back to one side of the head or in the back middle and the ears and eyes are not lining up anymore. Please go for a consult with the nearest cranial tech. They only do bands and pioneered the science. My son graduated on New YearS Eve after about 9 weeks in the helmet. He also has tort and goes for PT once a week. He was 4 months when we banded and it was the right choice. He was not getting better with repo and so we decided to go see a neurologist. She said it was up to us whether to band, it may round out it may not. Well, we went to cranial and with their measuring tools they found him to be 15 mm off which is moderate to severe. I truly believe if left utreated he would have facial assemitry and have a very flat back to his head. After treatment his forehead is even and ears have really leveled out. His head is almost completely rounded with the exception of one little spot on back bottom about an 1/2 inch that may never come out. He looks 100% better than before. Band now while it is the winter. If you get the scan or casting done next week, you will be in it in 10 days and can almost be done by the warmer weather. If you do it you will need to pay upfront and then get reinbursed later. Good luck. Tammy
jaimlee11 <jaimlee11@yahoo.
Hi,
I was told my son had plagiocephaly at our 2 month pediatrician's
visit. The pediatrician did not seem that concerned and told
us, "there is not much data on use of a helmet vs. no helmet, so I
wait and see if his head rounds out. Most children will round out on
their own by one year of age." At our 4 month check up, I told our
pediatrician I didn't feel my son's head was getting any better and
I wanted a referral for a neurologist, which he gave us. Upon seeing
the neurologist, he basically stated there is no prospective data on
the use of a helmet and he felt there was not much difference in
kids placed in helmet versus not using one. Our son is almost 5
months old now and I really don't see much change. After ready a lot
of blogs from Mom's who have used the helmet, I am concerned by
waiting, we are not doing the right thing. I'm also concerned that
our window of opportunity is closing if we decide to do a helmet. I
really don't want to look back and feel as if I could have done
something, adn didn't. Although, I don't want to place him a helmet
if we see no results! I just feel so stressed out about all of this.
Has anyone decided not to use the helmet and their child's head
eventually became round? We live in West Chester, PA and I would
also be interested in hearing on a good place to take him, if we do
decide to go with a helmet. One other factor, he also has
toricollis, and we are having a PT come out and do excercises with
him. Our ped also seems to think this will help his flat head. But,
I'm not sure if I can totally trust our ped's advice. Any
suggestions would be greatly appreciated.
0
comments
March









0 comments: