Health And General Life Care: [Plagio] Re: more head tilt with helmet?

I noticed that immediately when they put the helmet on Alex. He met
with his PT yesterday and she said to make sure to stretch his neck
really well after his bath since his muscles would be relaxed. She
said it's really hard to stretch those moscles without taking the
helmet off. We're just going to have to watch and see how he
responds. Since he's only been in the helmet for 2 days I can't
really say yet.

Lisa

--- In Plagiocephaly@yahoogroups.com, Kami Whitney <freeflykami@...>
wrote:
>
> Hey all!
> Keenan has been in his helmet for almost a week now, and I was
wondering if anyone else noticed that their kiddos with tort began to
tilt more with the helmet. It is mostly when he is on his back, even
after positioning his head midline, it seems to drift to the side
more than it did before the helmet... It also seems like the only
time he really minds the helmet is when he is on his back.
> Any ideas on what to do?
> Kami
>
> ladpurdu <ladpurdu@...> wrote:
> If you believe something is wrong you need to fight for
it. When I
> took my son to the doctor at 2 months for tort. the nurse acted
like
> I was crazy for even mentioning it and when I spoke with the doctor
> (of course the only one at my peds. that I don't like) she finally
> gave in to give me the referral to First Steps (IN government
program
> for babies) because I think she knew I wouldn't take no for an
> answer. When I finally was able to see my regular doctor at 6
months
> she kinda acted like there wasn't a need and that he would be able
to
> grow out of his tort. but said that if I felt comfortable to
continue
> with his therapy. He is 8 months now and still in therapy. I know
> of a couple kids who only had therapy for 2 months for tort so this
> makes me think there was a bit more to my sons tort. then the
doctors
> knew. I know for that reason alone that I did the right thing for
my
> son.
>
> He was just fitted with the band yesterday and has not had any
> problem so far. He seems to tilt his head more when it is on but
> I'll speak with his PT today about it and hopefully it won't be a
> problem when he gets used to it. Again my doctor acted like I was
> crazy when I told her that we had taken him to an orthotist to have
> his head measured per our PT's request. After she read his report
> she agreed that he did need it.
>
> I believe that a mother has a certain instinct about their kids. I
> knew something was not right with my son and I ended up being
right.
> Fight for your daughter, get a second opinion if you need to. Don't
> regret something that can't be fixed later.
>
> Lisa
>
> --- In Plagiocephaly@yahoogroups.com, llcoler@ wrote:
> >
> > My baby is 14 mo and was in the helmet for 8 mo and went from
14.8
> mm diag
> > diff to 4.5. She has tort and has been in PT since 5.5 mo. She
> looks much better
> > but still tilts on and off. She is NOT walking yet and is slow in
> gross
> > motor, but has PT weekly in the home. My concern is twofold and
any
> advice or
> > comments would be appreciated (I just don't believe the docs
> anymore!) We have had
> > xrays and have seen 3 ortho ped surgeons and 3 PTs and 2
> pediatricians and 1
> > cranial facial doc.
> > The questions are:
> > 1. The face asymmetry comes and goes - or becomes more noticeable
> when my
> > baby tilts - will this ever end and her face be OK/???
> > 2. There is a bulge on the side of her head opposite the
> flat/former flatter
> > spot - we have been told by the docs and PTs that eventually -
with
> growth -
> > this will not disappear but will be less of a percent of her head
> and thus will
> > not show/be noticeable.
> > Again, PLEASE, any input would be helpful. All the docs, etc have
> said she is
> > generally not tight and has decent - though not full ROM - and
> surgery will
> > not help and it is mild.
> > Laura
> >
> >
> > **************
> > Start the year off right. Easy ways to stay in shape.
> > http://body.aol.com/fitness/winter-exercise?
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> >
> >
> >
> >
> >
> >
> >
> >
> > **************
> > Start the year off right. Easy ways to stay in shape.
> >
> > http://body.aol.com/fitness/winter-exercise?
> NCID=aolcmp00300000002489
> >
>
>
>
>
>
>
>
> ---------------------------------
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>

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