Saturday, 19 January 2008

[Plagio] Re: Hi there!

Hi Ariel,
welcome to the group. Tricare is known for not paying for this - what
a shame. As for surgery vs a helmet, the band is totally non-invasive
- the exact opposite of surgery. Do you have any family in the US you
could stay with for 3 mo or so? I know it would be difficult to be
away from your husband for so long, even if it is possible, but I
would choose this over surgery. I've really only heard of surgery when
the brain growth is restricted because the sutures fuse too early
(craniosystosis).

Good luck either way.
-christine

--- In Plagiocephaly@yahoogroups.com, "Ariel" <aeishen@...> wrote:
>
> Hello! My name is Ariel and I am a proud mommy to a 12 month old
> with positional plagiocephly named Kayden! I live in Okinawa, Japan
> with my husband who is active duty military. Kayden had congenital
> torticollis which caused his plagio. Thankfully the tort is no
> longer present thanks to pt, but his headshape has not changed.
>
> Right now we are going through the process of getting treatment for
> Kayden. Tricare, our military medical insurance provider, will not
> cover the cost of bands or helmets. Kayden's deveolpmental pedi is
> sending pictures of his head to surgeons in Hawaii to see if we
> should have a consultation. Helmets/bands are pretty much a no-go
> for us because we are all the way over here. If we were in the
> states we would probably opt for the band, but since we would not be
> able to all of the follow up appointments required for the band, it
> looks like it's not an option.
>
> The thought of surgery really frightens me. I was wondering if
> there is anyone here who's child has had it?
>
> Well, it's nice to meet you all!
> Ariel
>

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